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Why an Hour of Conversation Can Leave Me Unable to Think
There is a moment I know well. I am mid-conversation — talking, listening, engaged — and then, with very little warning, everything stops working at once. Not just the words. The movement. The thinking. All of it collapses into what I can only describe as a super slow heap. It is not tiredness in any…
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Words Without Meaning
I came downstairs this afternoon. My partner was talking to me. I couldn’t understand a word. Not the sentences, not the context — just the occasional word floating through, disconnected from everything around it. She was talking and I was watching, and none of it was arriving. There was frustration on both sides. Talking to…
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The Scoot
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Measuring Fatigue — Why It’s Harder Than It Sounds
If you live with a chronic condition, someone has probably handed you a questionnaire about fatigue at some point. There are several recognised scales in clinical use, and they’re not all the same thing. Fatigue Severity Scale (FSS) — nine statements, each scored 1 to 7. Developed in 1989 for MS and lupus research. Designed…
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When the Scale Goes to Eleven — Living with Extreme Fatigue
Today I did a fatigue assessment. The Fatigue Severity Scale — nine statements, each scored 1 to 7, where 7 means strongly agree. The clinical threshold for significant fatigue is a mean score of 4. I scored 7.0. Every question, 7. The scale was designed in 1989, primarily for MS and lupus research. Its job…
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The Two Tool Strategy — What I Use and Why
April 2026 One of the first things I learned when I started losing cognitive capacity is that complexity is the enemy. Every additional app, every new interface, every extra subscription is another thing to remember, another thing to manage, another drain on the limited reserves I’m trying to protect. So I made a deliberate decision…
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How to build your own AI tools plan
